Flaptekst

Thomas Pearson has written an informed, insightful, and heartfelt account of what it's like to be an anthropologist stretched to confront a form of difference beyond what our discipline was built to accept. Margaret Mead famously declared that the mission of anthropology was making the world safe for difference. But when Erik Erikson asked Mead how to raise his newborn son, who had Down syndrome, she told him to send his child away. Pearson traces a transformation in Mead's understanding of difference and disability, and his own, drawing on archival research, wide reading in disability studies, and the lessons he's learned from life with his daughter, Michaela, who was born with Down syndrome in 2015. A beautifully written, honest, and insightful history of the world that children with Down syndrome and their parents now inhabit--and the new worlds they are making.--Danilyn Rutherford, President, Wenner-Gren Foundation for Anthropological Research Pearson illustrates the depths of disability negation that reach deep into our collective consciousness. An Ordinary Future is a timely and compelling reminder of how important it is to critically revisit the past to understand the present and envision future possibilities.--Aaron J. Jackson, author of Worlds of Care: The Emotional Lives of Fathers Caring for Children with Disabilities Pearson's research is omnivorous, and the anthropological framework that he applies to both his life events and the history of disability is clarifying. An Ordinary Future is honest, sharing painful experiences that do not flinch from admitting unflattering thoughts. This work isn't just about scholarship, but about telling a valuable story. Pearson has done this.--Chris Kaposy, author of Choosing Down Syndrome: Ethics and New Prenatal Testing Technologies